You will find below some interesting links that can give you information about the disease.

Associations

https://twanfoundation.nl

Links about the disease itself

https://www.ceredih.fr/uploads/Recos-AT-20100601-v1_Copil2.pdf (FR)
http://www.aprat.fr/wa_files/Livret_20AT_202016.pdf (FR)
http://www.ateurope.org/fr/vivre-l-ataxie-telangiectasie/vie-quotidienne/manger.html (FR)
https://www.atcp.org/ (EN)
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5123280/ (EN)
http://www.atsociety.org.uk/ (EN)

International DataBase for A-T.

https://atfamilies.org/?locale=fr

Document intended for the doctors

https://www.orpha.net/data/patho/Emg/Int/fr/AtaxieTelangiectasie_FR_fr_EMG_ORPHA100.pdf

Clinical trials

https://www.clinicaltrials.gov./ct2/results?cond=ataxia+telangiectasia&term=&cntry=&state=&city=&dist (en)

Latest news about the research

https://www.atcp.org/news/

Doctors in Belgium active in the “Erydel” terapheutic trial

Laboratoriumgeneeskunde Recruiting
Leuven, Belgium
Principal Investigator: Isabelle Meyts, PhD